European Congenital Cytomegalovirus Initiative


Patient groups

CMV Action

CMV Action is a national charity operating in the UK, an organisation of parents and volunteers who have come together to raise public awareness of congenital CMV and to campaign for better prevention measures within our health service. Our mission is to limit the devastating impact of CMV for those currently affected, as well as for future generations.

We offer advice and support to anyone affected by congenital CMV. We advocate for families affected by the virus and support them in ensuring that they receive the best possible service from their healthcare, education and social work providers.

We work with a number of medical professionals who have an interest in Congenital CMV and we support much needed research in this field. We aim to publicise any new CMV research findings via our website and social network pages.